Talking about death is important. Here’s why:
- Both people who are grieving, and those who are suffering with terminal illness, can experience a large degree of isolation and misunderstanding. —Dying Matters
- In the West, the final phases of life have become less familiar to modern generations, and the care of the elderly and the ill have been largely outsourced to institutions and professionals. — Being Mortal by Atul Gawande
- High income countries, like Sweden, evidence a higher number of deaths within hospitals than at home, although national surveys suggest most people would rather receive home care and die at home. — Journal of Palliative and Supportive Care
- Many minority groups have less access to knowledge and resources that could link them to better care at the end of life, often due to language and cultural barriers in institutions and care networks. — Care Quality Commission
Talking about death can better help us plan for life. It increases our likelihood to ascertain good care for ourselves and others at the onset of terminal illness and decline. It also helps families cope with grief, and feel prepared to face death when it comes.
Starting simple conversations can make a big difference in our society and in our lives personally. The first step to more compassionate care before and at the end of life starts with being curious about what death and dying mean. We at Death Ed would like to support that curiosity, and create spaces where all people can learn more, and deliberate on death and dying across borders.
Please see our storybook project, which connects diverse citizens, community leaders and healthcare professionals in discussions about death, dying, and what matters in the end.
And keep up to date on our calendar, where you can find information about our lectures, workshops, death cafés, and much more!
What is Palliative Care?
Here are some things you should know about palliative care.
- Palliative and hospice care are largely misunderstood or unknown concepts for many people. Yet, patients who pursue palliative care, on average, live 25% longer. — Being Mortal by Atul Gawande
- Palliative care can be defined as “an approach that improves the quality of life of patients and their families facing problems associated with life threatening illness” — World Health Organisation
- Most people confuse palliative care exclusively with end-of-life care, while it is an approach which is intended to improve quality of life early in a terminal illness trajectory. — Journal of Health Policy